Tuesday, November 4, 2008

I wish it were noticeable.

Found in the draft folder.......



Just once in awhile, I wish it were obvious that my oldest has autism. That when someone looked at him they would know and give him the compassion & understanding that he deserves. Now, I know that I am blessed that he has high-functioning autism. He is able to speak and do so many things that other children with autism can't typically do. For that, we are truly blessed. But it is an equally hard diagnosis because he looks so typical.

3 comments:

Constance Free said...

I have a similar issue with my daughter. She has a very rare syndrome that is often misdiagnosed as autism. Like your oldest she is quite high functioning. She's "normal" enough that people don't immediately get that she's different. Sometimes I wish she had a sign that said "I can't think the same way you can!! Please be kind to me"
Frustrating, isn't it?

Constance the 32nd said...

Ohmygosh, I totally understand you on this! My daughter has ADHD and ODD (and sometimes I wonder if it's also some type of autism) and so when she acts out, I get these awful, judgemental looks of either "Why can't you control your child?" or "Wow, what a great mom you are - in a sarcastic way." And I feel bad for her too because people don't fully understand her and how she is. I can't even begin to tell you how much I hate that.

Joanne said...

My son is so cute, he is really gorgeous, and he's super friendly too - or he seems to be, he's always up in everyone's grill. He has autism and he's not much of a talker, which I guess means he's not very high functioning? Anyway, I know what you mean.

The other day I had him to the ped because he had a cough and a little fever. We were in the waiting room and the nurse asked me if he'd wear a mask and I was like, mmmmm I don't know. So I tried it and of course he wanted nothing to do with it. This other mom was saying to him "oh look, there are STARS on it!" and I said "I just don't think he's going to do it. He has autism and he can be a little ticky about stuff like that". She was really nice, she said, "he's also a little kid, none of them like to do stuff like that". I sometimes forget that he's only four years old, too. It made me feel better, she was so nice about it.